Association Against Rare Peritoneal Diseases
Founded in 2007 by patients with rare peritoneal tumors , AMARAPE brings together all those who want to fight these rare and often misunderstood diseases: patients and their loved ones, doctors, and caregivers.
Who are we?
Founded in 2007 by patients with rare peritoneal tumors, the National Association Against Rare Peritoneal Diseases (AMARAPE) brings together all those who want to fight these often little-known rare diseases: patients and their loved ones, doctors, and caregivers.
AMARAPE is a volunteer-run association recognized as being of public interest.
AMARAPE has four objectives:
- To inform the public, the medical profession, and health and social authorities in order to improve the diagnosis, treatment, and follow-up of people with rare peritoneal diseases;
- To facilitate equal access to care for patients throughout the country, in conjunction with the national reference center for the treatment of rare peritoneal tumors;
- To offer a listening ear to patients and their loved ones affected by peritoneal diseases;
- To contribute to medical research and the improvement of care practices relating to peritoneal tumors.
AMARAPE's actions
Support for patients and their loved ones
AMARAPE aims to combat the diagnostic uncertainty that too often characterizes the journey of patients with rare diseases. By sharing information and facilitating exchanges, AMARAPE aims to provide support throughout the care journey for patients and their loved ones. It is important that every patient has access to appropriate care in specialized centers.
Because receiving a diagnosis is always a shock, AMARAPE offers patients and their loved ones advice and testimonials on its website. For those who wish, AMARAPE offers its members an attentive and sympathetic ear at every stage of the care journey.