RENAPE: NATIONAL REFERENCE NETWORK FOR RARE PERITONEAL TUMORS
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RENAPE What is it?
RENAPE is the National Network for the Management of Rare Tumors of the Peritoneum, created in 2010 and (re)certified by INCA in 2019, which attests to the commitment of the teams and their excellence in carrying out their missions.
See the dedicated section on the e-cancer.fr website
Presentation of RENAPE by Laurent VILLENEUVE, network coordinator
RENAPE brings together healthcare professionals with solid expertise in rare peritoneal tumors: peritoneal pseudomyxoma, peritoneal mesothelioma, desmoplastic tumors, primary serous carcinomas, and peritoneal psammocarcinomas.
https://www.renape-online.fr/lequipe
AMARAPE and RENAPE work together to raise awareness and recognition of rare peritoneal diseases. This collaboration strengthens the actions of each organization by bringing together two perspectives: that of patients and their loved ones, and that of experienced and expert medical teams.
Read the article on the crabe.fr website: “AMARAPE and RENAPE: A collaboration against rare diseases of the peritoneum.“
What does RENAPE represent for patients?
Interview with Laurent VILLENEUVE, RENAPE coordinator
Access to professionals who are familiar with these rare diseases
Treating such rare tumors requires a multidisciplinary approach. Each of these diseases has specific clinical, diagnostic, and therapeutic characteristics.
To access expert and specialized centers, visit https://www.renape-online.fr/trouvez-votre-centre.
Discussions between experts on these rare diseases
The Network has enabled various experts to organize monthly Multidisciplinary Team Meetings (MDTs) that bring together all stakeholders, surgeons, radiologists, anatomopathologists, and oncologists from several regions of France. During these meetings, patient files are examined and opinions are issued based on discussions between several experts and their extensive experience in treating these diseases.
For more information: https://www.renape-online.fr/rcp/
Development of recommendations for good clinical practice
Drawing on its network of surgeons, radiologists, and pathologists, the RENAPE network has published recommendations for all physicians over the years. The clear objective is to inform and train healthcare professionals who may only see one or two cases of rare peritoneal diseases in their entire careers.
The development of pathological review of difficult cases
The diagnosis of these rare diseases is linked to pathological analysis carried out by experts in this field. Over the years, several doctors have developed significant and specific skills, complemented by international exchanges. Review groups, where certain tumors are observed in great detail, provide second opinions. This pooling of knowledge is a major benefit in the diagnosis of these very rare diseases for patients.
RENAPE manages a national registry that is unique in the world
When it was created, RENAPE immediately sought to compile the various cases of rare diseases in a database that is unique in the world. The various specialists belonging to the RENAPE network thus pool the treatment offered to their patients, their care, and their follow-up.
This registry, which is a testament to transparency and national collaboration, has led to improvements in care over the years. As a result, the time between the date of diagnosis and the patient’s admission to a specialized center has steadily decreased in recent years.
