Patient testimonials

These appointments saved my life! After two years of unexplained fatigue and abdominal pain that my doctor couldn’t link to a specific organ, I finally had an appointment that literally saved my life. During a skiing vacation, my abdominal pain intensified to the point that I had to see the

I celebrated my 70th birthday in the hospital. Although I didn’t pay much attention to the signs my body was giving me, I led a healthy and active lifestyle. But after experiencing unusual fatigue, mild pain, and weight loss, I decided to see my doctor. He prescribed an MRI, and

For me, 2022 was a year of two halves. It was the best year of my life, with the birth of my son Marceau on February 6, a moment of immense joy. But it was also a year of brutality that I had not anticipated. Two months later, on March

My name is Lucie and I had surgery for high-grade peritoneal pseudomyxoma in 2022, at the age of 22. It all started with bloating, a feeling of heaviness after every meal, and a weight loss of 10 kilos over two months without any particular change in my lifestyle. As the

In May 2023, I learned from a very good doctor that I had peritoneal mesothelioma, a very aggressive form of cancer. My three children and I were devastated. Amidst this misfortune, I was fortunate and lucky enough to be treated at a specialized center by one of, if not the

Should you share your story to help others with the same illness, or to reassure yourself? It’s probably both at the same time. Talking about your experience is already a way of overcoming the illness and not being afraid of it anymore. My stomach cancer was discovered six years ago;

I had surgery for low-grade peritoneal pseudomyxoma in October 2020. I was 28 years old. And I have now been in remission for almost two years. Everything is fine. How was it discovered? We wanted a baby. After trying for a year with no success, I made an appointment with

I was diagnosed with peritoneal mesothelioma in March 2021 after the discovery of ascites, which led to an endoscopic examination of the peritoneum. This was a particularly unsettling time for me as I had no specific symptoms. What’s more, the diagnosis was given to me by doctors who were not

I underwent surgery for peritoneal pseudomyxoma on January 2, 2020, at a specialist center. The surgeon and his team performed cytoreduction and HIPEC surgery a year ago. I underwent a lower polar gastrectomy and a subtotal colectomy, as well as removal of my spleen and gallbladder. It was a major

When I was diagnosed with my illness (peritoneal pseudomyxoma following ovarian cancer), my surgeon strongly advised me to visit the AMARAPE website instead of searching anywhere else on the internet. It helped me a lot. And now, more than two years later, I would also like to participate and share

I had surgery for low-grade peritoneal pseudomyxoma four months ago. Today, I am doing very well. I’m going back to work in a few days on a part-time therapeutic basis and I’m making the most of every moment of life. I hope that my story will help you to face

Reading the various testimonials about discovering the disease helped me understand and comprehend what I was going to have to face. I now want to share my own testimony in the hope that it might help you in turn. I started experiencing pain in January 2017 in the lower right

I hesitated for a long time before writing this testimonial, but this time I decided to do so because all the testimonials I have read have helped me to understand both the disease and the challenges that lie ahead, and above all, to feel less alone. I hope that mine

Here is my testimonial following my operation on August 29, 2017: This testimonial is first and foremost a message of optimism for those who will undergo HIPEC surgery in the future, because three months after my operation, I have regained almost 100% of my physical abilities and my spirits are

Following my first testimony in 2014, I would like to contribute to a topic that, while seemingly marginal at first glance, is, in my opinion, of significant importance. I am referring to the attitude of those around the patient. The attitude of a patient’s loved ones can be divided into

I’ll start on a positive note: I had surgery (HIPEC) a little less than six months ago and am doing very well today. It is difficult to discover that you have a rare peritoneal disease and then undergo major surgery combined with intraperitoneal chemotherapy, but you eventually return to a

This short message is intended for people who are uncertain, who are apprehensive about HIPEC, who have doubts about the need for this operation, and who have questions about their physical abilities after surgery. Following a routine operation for an inguinal hernia in November 2013 at the local hospital, the

I am 62 years old and had surgery eight years ago (2009) for peritoneal pseudomyxoma. I haven’t given any news for a very long time (see testimonial from July 2010). I wanted to let you know that I am doing very well and that it took me about two years

In November 2004, I was diagnosed with “gelatinous peritoneal disease.” It was a huge shock! I had no symptoms and was in excellent health for my age (47) and physical condition. I ran about 20 kilometers every week, weighed 52 kg, was very active, had gone back to school, and

September 2012: Pain in my legs, unable to walk, lateral polyarthritis: 8 days in hospital and 6 months of anti-inflammatory medication. December 2013: My mother died of a long battle with cancer 7 days before Christmas. Two days before her, my uncle also passed away from cancer. For several weeks,

Unaware that I was ill, I probably carried the disease for several years without even realizing it. I had no symptoms and was in pretty good shape! So this is how my life changed irrevocably… In mid-March 2015, I came down with a terrible urinary tract infection. My doctor managed

After the unsuccessful operation in 2014, I more or less recovered. I didn’t want to try another round of chemotherapy with Avastin, which my surgeon suggested, because I had no indication that it would work and I was very afraid of the side effects. I took homeopathic medicine and adapted

Here is a brief summary of my story and my journey with the disease. It was 2007, I was 17 years old, and I suddenly started experiencing increasingly intense abdominal pain over the course of several months. I was in high school and I loved dancing, practicing for hours every

For me, the story begins at the end of May 2012. In the previous months, I had had a series of urinary tract infections, without any of the usual symptoms. My doctor prescribed an ultrasound scan to rule out any risk of kidney infection. I went for the scan without

Stéphanie, 30 years old In early September 2014, I started to feel a slight pain in my appendix. I didn’t think much of it, but my friends and colleagues thought I looked really unwell and insisted that I see a doctor. The general practitioner sent me for an ultrasound the

Anne-Marie, 47 years old. It all started with stomach pains. Some mornings, I would wake up with a slight ache and end the day with a huge, painful stomach, as if I were pregnant. And the next day, nothing, everything was back to normal. My doctor treated me for over

My name is Isabelle and I am 45 years old. In 2012, I went to the emergency room three times with severe stomach pain. Nothing was found. The only thing noted was that my white blood cell count was 11,500, which is high for someone who lives a healthy lifestyle,

A patient in good shape My surgery for peritoneal pseudomyxoma with HIPEC was back in March 2002. A year after I retired… The operation went well, the surgeon worked like a master! I remember him as a serious, affable man, concerned about his patient and visiting him frequently. Thank you

– Spring 2013: Although I was in good overall health, for several months I had been feeling tired, needing naps, and experiencing fleeting feelings of exhaustion. I decided to consult a doctor specializing in morphological medicine, anti-aging, and micronutrition . An initial blood test revealed a severe B12 deficiency and

When I went to see my doctor in September 2012 for what I thought was a swollen lymph node, I had no idea that it was the beginning of a long journey, one that is still ongoing. I was in great shape, a little tired after a busy summer season,